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Strongly
Disagree |
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Strongly
Agree |
| 6 |
CHSS multi-institutional studies of surgical outcomes of patients with congenital heart disease have been of great value. |
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| 7 |
The types of studies done by the CHSS and the methodologies employed in past studies continue to be relevant and of great value. |
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| 8 |
The value of CHSS multi-institutional outcome studies is less than that of multi-institutional randomized trials. |
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| 9 |
My institution would be likely to enroll all eligible patients in protocol-driven CHSS multi-institutional studies. |
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| 10 |
The CHSS should pursue studies that evaluate other outcome domains, such as neurodevelopmental outcomes. |
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| 11 |
The input of the Society’s membership has played a major role in the selection of topics for CHSS multi-institutional outcome studies. |
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| 12 |
The Society’s membership have had a major role (beyond patient recruitment) in the conduct of CHSS multi-institutional outcome studies. |
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| 13 |
The opportunity to participate in CHSS research studies as an investigator is easily accessible to all members. |
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| 14 |
The opportunity to participate in CHSS research studies as an investigator is easily accessible to me. |
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| 15 |
Access to participation in CHSS studies as an investigator is fair. |
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| 16 |
Access to participation in CHSS research studies has improved in recent years. |
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Strongly
Disagree |
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Strongly
Agree |
| 17 |
I learn about ongoing CHSS research studies primarily at the time of the Annual Meeting. |
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| 18 |
I receive communication from the Research Committee at other times during the year. |
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| 19 |
I receive communication from the Data Center at other times during the year. |
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| 20 |
I receive communication about CHSS studies at other times of the year, but I do not recall whether it comes from the Research Committee or from the Data Center. |
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| 21 |
I have travelled to Toronto to participate in a CHSS study. |
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| 22 |
I have travelled to Birmingham, Alabama to participate in a CHSS study. |
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| 23 |
I have travelled to another location (Cleveland, Philadelphia, Minneapolis, etc.,) to participate in a CHSS study. |
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| 24 |
The impact of CHSS studies is hampered by the fact that enrollment of patients is voluntary (with respect to both physicians and families) so that there is uncertainty as to whether enrollment is complete or representative. |
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| 25 |
With rigorous statistical methodology, outcome analysis is valid despite the voluntary nature of enrollment. |
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| 26 |
There would be value in linking the CHSS Database with the Congenital Heart Surgery Database of the Society of Thoracic Surgeons (STS), if such a linkage can be created using a methodology compliant with HIPPA requirements. |
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Strongly
Disagree |
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Strongly
Agree |
| 27 |
The CHSS Data Center has been fair in allowing members to participate in CHSS studies. |
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| 28 |
The CHSS Data Center has been transparent in keeping members updated regarding CHSS studies. |
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| 29 |
I feel invited to participate in CHSS Data Center Activities. |
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| 30 |
My institution would benefit from more direct involvement of the CHSS Data Center in our institution’s IRB/HIPPA processes. |
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| 31 |
My institution would welcome periodic visits or telephone conferences with CHSS Data Center personnel. |
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| 32 |
The CHSS Data Center should have access to information from our in-house database, in order to know whether all eligible patients are enrolled in CHSS cohorts. |
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| 33 |
My institution would be likely to commit more than the current per year to CHSS Research, if the assessment were to be increased in the next few years. |
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| 34 |
The CHSS can use industry support to help finance research activities, without concern for, or the appearance of conflict of interest. |
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